Two sick children and a $1.5 million bill: One family’s race for a gene therapy cure
Both exciting and depressing AF. But to be honest, these days that rings true for many a topic, doesn’t it?
One day, gene therapy may help with the rarest of diseases. Some parents aren’t waiting. […]
I asked [neurologist Christopher Janson] if he thought it was fair that the Landsmans’ kids could end up getting treated while some other family without a surprise GoFundMe success would not be. “Unfortunately, there are a lot of things in society that are not fair,” he said. “There are parents who want to see me in my neurology clinic and can’t because they don’t have insurance. We have a problem in society.”
Yes, we absolutely do. It’s not as prevalent here in Germany as it is in the US, but still.